Its been super busy two weeks. We are doing land and water therapy Monday-Friday and he is loving it. Still disliking the last 2 min of PT but none the less 90% of the time all smiles. I'm fortunate to have such a happy kid/class clown. He walks in doing the chicken dance and doing silly faces just to entertain anyone that's watching. As we enter the PT waiting room we see our friends all dreading the last 2minutes of PT. Our little friend Mariel throws up every day. She has so much anxiety that she just can't help it. Bless her them both! Ethan has his bad days were he doesn't want to participate but they are very few. I personally don't like those days but shouldn't complain too much. He is so cute when he sees his friend crying prior to PT he says "He is having a bad day, right mommy." My baby is too sweet!!! Two days later he tells me that he is having a bad day! UGH Poor baby!!! Every time he is having a bad day he tells me he wants to go back to TEXAS!! How I wished it was that easy!!!
Daddy and Grandma flew in and Ethan of course soaked them up. We went to Loggerhead Marina and took Grandma to the beach. I of course took a much needed semi-break. Wished it was longer but I'll take what I can get. LOL Grandma and Daddy only stayed for a few days but they were so glad to spend time with us. We probably wont be seeing daddy tell we get to go home.
I started running last week and let me tell you nothing is better than soaking in the sun and the beautiful beach. Yesterday, I couldn't resist, I walked along the water and attempted to run! It's a tough work out but worth it.
We had our 4th Post-Op appointment on Monday and we received a good report card. We are at 48 mm out of 80 mm (he has gained 48 mm in 57 days). Hopefully by the end of the week we will be over 50 and getting us closer to our goal. Ethan has been doing fairly well this past weeks. Last 2 weeks we went from 3/4 turns and that helped with flexibility. We went from 60-70 degrees bending to 70-83 last week. He had another post-op appointment on Monday and they told us to alternate between 3/4 and 4/4 turns. Hopefully, that will help us get closer to our goal.
Ethan is having a hard time when we put in his knee bar at night and when we take it off in the morning. The knee bar is to straighten out the knee. It also stretching everything out and making it hurt for at least an hour and a half. Some kids don't wear it all night so we are very fortunate.
All the kids are doing great. I think our friend Lily is done and Sofia is probably going to be done by the end of this two weeks. Abby, Sofia and Eyal are having x-rays on Friday so we will know how they have progressed but I willing to bet that they are at least 10 mm ahead of us. Since we were doing 3/4 turns that put us back some.
Thank you for all the goodies Ethan has received! He is enjoying them and loving getting mail. Please continue to pray for us. I hear that the more we lengthen the harder it gets!