"STRENGTH does not come from physical capacity.
It comes from an indomitable will. "
~ Gandhi

E-Rod's Angels

E-Rod's Angels

Friday, May 25, 2012

Home Sweet Home (Week 19)

We arrived back to Dallas on the 5th and it's been non-stop since then.  Our flight landed at 10 AM and it took an hour to get home from DFW!  Dallas of course, welcoming us back in style!  Nothing better than being stuck in bumper to bumper traffic.  As we drove into the city, I kept telling myself "Why did I want to come home?".  Where are the palm trees, the beach and the green grass!  I thought Dallas had been getting lots of rain.  Why is everything dead?  We did miss daddy and he is not moving to Florida so we have to come home!  I missed my king BED without Ethan!!!  It's so good being home and not having to share a bed with your son and a fixator!!!!

I spent the first week trying to un-pack and organizing the house and going to work and organizing my case load!  UGH  Wishing I was still in Florida and not having to deal with reality!  My advise to all the moms/dads is to stay in Florida as long as you can because it's hard to get adjusted.  Ethan went to school immediately on Monday and Mommy was off to work! The first few days back to work were super hard.  Not only was I exhausted from cleaning, unpacking and packing!  (Inner thought "I sure do miss the beach!")  Ethan's school has been great and the kids are so sweet with Ethan!  They welcomed him back with open arms!  He is a happy kid!  My Ethan is back!!

It took two PT evaluations before actually getting on someone's schedule!  Torture pure torture!  If I had known how hard it was going to be we would have stayed in Florida!  We had the evaluation the first week we got home and he had his first PT appointment last Friday.  Almost two weeks later!!!  Last Friday was his first actual PT and daddy is now in charge of PT, Pin care and stretches at home!  Am I wrong for giving him so much responsibility?  I think not. I've spent 4 months taking him to 2 PT's a day, pin care, stretches, feeding him and making sure we get the 8 CM we needed.  I think I'm due for a vacation.  Don't you think?  Don't ask daddy because he disagrees!

Friday's PT was pure torture for daddy.  Tuesday came around and he said it was beyond insane!!! His actual words were "I don't have the patience for this and your son is beyond insane".  My actual words of wisdom to him were "Get over it and deal with it! You have to be patient.  It's new people new place and his routine has been changed again!" I admit, I laughed when he told me!  Of course, I got grief later that night for not being supportive.  But I reminded him that I dealt with this type of behavior day in and day out for 4 months straight!!!  Yes, he came and visit but he was able to walk away and not have to deal with it until his next visited!  I guess I'm being a little hard on daddy but I just wanted him to experience a little of the craziness I had to go through!  We had a big talk with Ethan when we got home  and explained to him how important it was to listen to his new therapists.  We told him that the biting, kicking and screaming had to stop.  Wednesday's PT was 90% better with the exception of the last stretch!  Can you guess which stretch it was?  Yes, belly time!  He is getting 76 degrees in bending and of course 0 degrees with knee bar so we can't complain too much.  He is also keeping a natural bend at about 50 degrees.  Stretches at home are a breeze.  I've done a couple since I got home and he is 100 % better. He still feels tight but I guess that's normal. Ethan will have PT every Tuesday-Friday hopefully they can add Monday soon.

Since, being back home we've partied every weekend with birthday parties and now this weekend if Ennis National Polka Fest.  Abby is coming home so we are eager to see her and Charlie!  I went for my first run and I realized it will never be the same.  I MISS my runs to the beach, soaking my toes into the sand and looking at the blue beautiful ocean!

A few weeks ago our friend Emily and Aubrey had surgeries.  As we get near the end and they are just starting, and I get a lump in my throat just thinking how hard that first month was.  They are both doing very well and we can't wait to see them.  Mariel had her fixator removed on Monday and has been casted.  Lilly will be next in line to have her fixator removed.  I think she is scheduled for the first week of June.  She is also doing very well.  Sophia, Eyal and Abby will probably go before us but we are happy as long as his bone gets super strong!  Graham is doing well and happy to be home.  Liddy has gained 4 inches of the 6 she wanted to gain!  We will not be able to recognize her when we see her again.  We miss our missing our Quantum House family that's for sure.

Ethan had his appointment with Scottish Rite and his first monthly x-ray today!  It looks great!  The bone is looking great! 

Thank you once again for all the love and support!

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