We've done research on housing, flights and car seats and found that the pricing is very expensive. For that reason, I started the E-Rod's Angels blog. We know families that are struggling with the news that their child might need limb lengthening or super hip surgery or just finding out that their child has PFFD. A group of us have managed to keep in touch via email and share our thoughts. We try to meet at least once a month to bounce ideas, share our fears and give each other moral support. I find that having them has helped us in way that you can't even imagine. Not only do I have families feeling the same emotional roller coaster but our kids grow up knowing that they are not alone.