5th Post-Op (11 weeks)

Our last 2 weeks have been pretty fun. We went to International Polo Club for St. Patty's day. We had Class of 2012 pics with Dr. Paley. We went out to Juno Beach to see Melba get released into the ocean. Ethan was able to see Fletch the Loggerhead mascot which he loved! On Sunday we went to Lily's for some pool and fun time!

As far as work goes....the week of the 12th we got to 80 degrees in bending. At this point the knee bar is still an issue. He cried for 30 min to an hour. On the 15th he had restless night but not crying at night. The week of the 19th and we still having knee bar issues. Finally, i decided that maybe he should wear it more so he had it on from 3-6:30 PM. He cries for about an hour but finally he is fine and playing Mario. Stretches at home look good and we are from75-83 degrees. On the 20th he didn't wear the knee bar during the day but we had a good stretch and no crying with knee bar at night. I really hope he has better nights in the days to come. He is so ready to go to Texas that he is being such a sport about it all.   He is eating a lot better and even willing to wear his knee bar during the day.

The past two weeks Ethan has told me he doesn't love me right after PT at home. He tells me to get away and go back to Texas. I have to be strong but it hurts to hear those words! I told him today that it hurts me when he says that so I hope he stops it! However, I don't blame him! PT is no fun that's for sure!!! Ugh, I'm so ready for it to be over!!!!

We had our 5th Post-Op appointment today and for the most part all looked great. Bone looks beautiful and we are at 5.5 CM of our 8 CM goal (14 days he gained 13 mm.) The x-ray showed a gain of 61mm total in 70 days in but they tell you that the x-ray is magnified so it shows more than actual gained. Servando and Prince are concerned that the hip might be moving and therefore Ethan will need to get x-rays on Monday. Please pray it was just a bad hip view and that the hip is not starting to dislocate. We are still alternating between 3/4 and 4/4 turns and since it's working we will continue!

As far as the rest of the Class of 2012 goes, we have Lily going home on Friday and Mariel going home next week. Sophia has an appointment this week but I'm sure she is also finished at the end of the week. Abby girl is having serious pain at night due to our friend the knee bar. Eyal is doing good but also not liking the knee bar. Elenore will also be done soon and getting to go home but hating the knee bar. Claire might have a broken pin but they are continuing with the lengthening. We hope she can get to her goal of 8 CM. Our new friend Jesse is having a bad first week of PT and Liddy is home but in some pain. She starts PT this week so please add her to the prayer list.

All fun and games at Quantum House but we are all working really hard to rich our goals. Continue to pray for all the little troops and Mommy's and daddy's. Please also pray that Ethan's hip is not dislocating!

Good night and thank you for all the support and prayer!!!

4th Post-Op (9 weeks)

Its been super busy two weeks. We are doing land and water therapy Monday-Friday and he is loving it. Still disliking the last 2 min of PT but none the less 90% of the time all smiles. I'm fortunate to have such a happy kid/class clown. He walks in doing the chicken dance and doing silly faces just to entertain anyone that's watching. As we enter the PT waiting room we see our friends all dreading the last 2minutes of PT. Our little friend Mariel throws up every day. She has so much anxiety that she just can't help it. Bless her them both! Ethan has his bad days were he doesn't want to participate but they are very few. I personally don't like those days but shouldn't complain too much. He is so cute when he sees his friend crying prior to PT he says "He is having a bad day, right mommy." My baby is too sweet!!! Two days later he tells me that he is having a bad day! UGH Poor baby!!! Every time he is having a bad day he tells me he wants to go back to TEXAS!! How I wished it was that easy!!!

Daddy and Grandma flew in and Ethan of course soaked them up. We went to Loggerhead Marina and took Grandma to the beach. I of course took a much needed semi-break. Wished it was longer but I'll take what I can get. LOL Grandma and Daddy only stayed for a few days but they were so glad to spend time with us. We probably wont be seeing daddy tell we get to go home.

I started running last week and let me tell you nothing is better than soaking in the sun and the beautiful beach. Yesterday, I couldn't resist, I walked along the water and attempted to run! It's a tough work out but worth it.

We had our 4th Post-Op appointment on Monday and we received a good report card. We are at 48 mm out of 80 mm (he has gained 48 mm in 57 days). Hopefully by the end of the week we will be over 50 and getting us closer to our goal. Ethan has been doing fairly well this past weeks. Last 2 weeks we went from 3/4 turns and that helped with flexibility. We went from 60-70 degrees bending to 70-83 last week. He had another post-op appointment on Monday and they told us to alternate between 3/4 and 4/4 turns. Hopefully, that will help us get closer to our goal.

Ethan is having a hard time when we put in his knee bar at night and when we take it off in the morning. The knee bar is to straighten out the knee. It also stretching everything out and making it hurt for at least an hour and a half. Some kids don't wear it all night so we are very fortunate.

All the kids are doing great. I think our friend Lily is done and Sofia is probably going to be done by the end of this two weeks. Abby, Sofia and Eyal are having x-rays on Friday so we will know how they have progressed but I willing to bet that they are at least 10 mm ahead of us. Since we were doing 3/4 turns that put us back some.

Thank you for all the goodies Ethan has received! He is enjoying them and loving getting mail. Please continue to pray for us. I hear that the more we lengthen the harder it gets!